NJCDD 5-Year Planning 2022-2026

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Every five years, the New Jersey Council on Developmental Disabilities develops a State Plan that reflects a comprehensive review of major service systems and issues as they affect children, teens, and adults with intellectual/developmental disabilities (I/DD) and their families in New Jersey. The State Plan is developed in accordance with the Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act). The Council’s work centers around system change activities.

The plan is important because it outlines goals, objectives, and activities that the NJCDD will implement in order to bring about system change. The State Plan guides the work of the Council and drives decisions about how staff and fiscal resources are used.

Right now, NJCDD is in the process of developing its Five-Year State Plan for the period from October 1, 2022 – September 30, 2026.

We are gathering input from the community to formulate our goals for the next five years. We want to hear from individuals with I/DD, families, caregivers, service providers and other stakeholders about what is working for people with developmental disabilities; what needs to change; and, how could it be changed.


Public Input period ends July 31.


Take a Survey
online or print it and mail it to
20 West State St., 6th Floor,
P.O. Box 700, Trenton, NJ 08625-0700

Download the survey:  English or  Spanish

send us a letter

Send us a letter
20 West State St., 6th Fl.
P.O. Box 700, Trenton, NJ 08625-0700

Call Us

Call Us


Send Us an Email or Text

with “5-Year Plan” subject line.


Virtual Townhall Meeting
Sussex, Warren, Morris, Bergen, Hudson, Passaic, Essex

June 26 at 12 noon

Somerset, Union, Hunterdon, Middlesex, Mercer, Monmouth, Ocean
July 1 at 7:00 pm

Atlantic, Burlington, Camden, Cape May Cumberland, Salem, Gloucester
July 9 at 7:00pm

All counties spoken Spanish
July 13 at 12 noon

Each 90-minute session will have a limited number of individual testimonials. Additional written testimony will be accepted at njcdd@njcdd.org. Please must register in advance in order to receive the virtual event link.


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Q: Should I do the survey or speak at a virtual meeting?

A: That is up to you. You can do both. You can also send us a letter, an email or call us with your input.

Q: Who should provide input?

A: We want to hear from individuals with I/DD, parents, relatives, caretakers, service providers, and other stakeholders such as teachers, direct support professionals, and anyone else who participates in services and systems supporting people with I/DD.

Q: What should I say?

A: We want to hear about what is working; what needs to change; and, how could it be changed.

Q: What are the topics I can talk about?

A: The work of the Council covers all aspects of life. You can talk about your priorities and thoughts for:

• Employment
• Health and wellness
• Transportation
• Arts and recreation
• Early intervention, childcare, and special education
• Transition to adulthood and college/job training after high school
• Money and finances
• Independent living and housing supports
• Self-Advocacy and Peer Support
• Making Decisions
• Any other areas that matter to you

A: We also want to hear about ‘cross-cutting issues,’ such as:

• Access to technology
• Poverty among people with disabilities and their families
• Accessing and coordinating services across agencies and systems
• Access to mental health resources , behavioral supports and crisis services
• Emergency planning and safety
• Racial disparity in service delivery and access
• Culturally-competent supports and/or services – the full inclusion of people of different cultures and identities.
• Planning for the future (Trusts, Wills, Supported Decision Making)
• Issues affecting caregivers, siblings, and other family members
• Public awareness efforts that affect all people with disabilities
• Criminal justice and reentry issues affecting individuals living with I/DD

Q: How much time will I have?

A: Try to keep your comments to under 5 minutes. 5 minutes goes pretty fast, so you might want to write down comments, or write an outline to help you keep organized.

Q: What if I forget to say something?

A: No worries. Send us an email at njcdd@njcdd.org or a letter The New Jersey Council on Developmental Disabilities, 20 West State St., 6th Fl., P.O. Box 700, Trenton, NJ 08625-0700, or call 609-292-3325 and leave us a voice message.

Copyright 2019- The New Jersey Council on Developmental Disabilities
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