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An Enhanced Family Crisis Handbook
A Behavioral Health Wellness Kit
The purpose of this expanded version of the Toolkit is to empower individuals with disabilities and their family and professional caregivers by providing information to more effectively advocate for persons with complex severe behavioral health conditions (which we formerly referred to as “dual diagnosis”) for treatments, supports, services and the conditions that promote mental wellness.
Download the copy here
The Revised Family Crisis Handbook 2nd Edition
The goal of this project is to develop and disseminate The Revised Family Crisis Handbook for individuals and families seeking information and assistance in addressing dual diagnosis (developmental/intellectual disability and mental health). Using the July 2009 Family Crisis Handbook as a springboard, the grantee developed a list of current resources and detailed contact information.
The guide describes how to navigate the system and defines the key players and their roles in connecting families and individuals to service options. Electronic versions of the handbook and supporting materials are available below.
Download a copy Here
Additional Information and Resources
• Promoting Healthy Brain Aging in the Time of a Pandemic
• Ability to Launch Autism & Transition
• Aging with Disabilities
• Borderline Personality Disorder & IDD
• Early Recognition of Dementia & IDD
• Everyday Supports-Adults with Dual Diagnosis
• National Task Force-Early Detection Dementia
• Overview-Mental Health Disorders & IDD
• NJ Crisis Response – C.A.R.E.S.
• See Me for Me-Person Centered Positive Supports
• Shared Decision Making-Mental Health-IDD
• Suicidality & IDD
• Voice & Choice-Wellness & Recovery
Supports Program and Community Care Program Policies and Procedures
A Quick Guide for Families was created and updated by the Division of Developmental Disabilities (DDD) in collaboration with the Regional Family Support Planning Councils. It includes concise summaries of DDD’s Supports and Community Care Programs.
Download the copy English
Download the copy Spanish
Printed copies can be requested using the following form here.
Due to public health emergency, requests will be fulfilled when our staff can safely return to the office. Thank you for your patience and understanding
Accessing Developmental Disability Services in New Jersey: A Resource Guide for Individuals and Their Families
The purpose of this guide is to provide basic information regarding how a person with a disability can access eligibility and intake for government-funded services. It is intended to assist individuals with disabilities and their families. Websites are provided when seeking additional information. Regulations and operating procedures change frequently, so the reader is encouraged to utilize the internet references supplied to obtain the most current information available.
English
Espanol
In 2012, New Jersey became an “Employment First.” It is a national movement to establish “a framework for systems change that is centered on the premise that all citizens, including individuals with significant disabilities, are capable of full participation in integrated employment and community life.” (U.S. Department of Labor).
NJ Family Support Planning Council had David Hoff, a wonderful national leader who presented an overview of New Jersey’s Employment First policies and practices and its best practices and areas for improvement. They also welcomed three department representatives that provide interagency support to students in the transition from school to competitive integrated employment.
Resources
Employment Presentation slides by David Hoff
Students in Transition from School to Employment Presentation slides by DOE, DVRS & CBVI Interagency Collaboration
DVRS Trifold brochure
PRE-ETS Student Referral Form
Informed Choice and Employment Overview
Work-Based Learning Brief
The Heart of Home: Person-Centered Housing Options for People with Intellectual/Developmental Disabilities (New Jersey Regional Family Support Planning Council Statewide Meeting)
The recorded session can be accessed here.
Finding the right housing and support for people with developmental disabilities is a constant challenge in New Jersey. Diane Riley, Executive Director of Supportive Housing Association of New Jersey (SHA NJ) and Jennifer Brown, Housing Navigator/Eiros Group, explains how they can help guide you and your loved ones to pursue appropriate housing and support.
Presentation Slides:
SHA Housing Presentation 2022
Self Directed Housing
Supportive Housing Association of New Jersey – Housing Hub
” Accessory Dwelling Units Presentation” can be found under the February 2 annual meeting section
Division of Developmental Disabilities (DDD) Office of Education on Self-Directed Services
Integrated Supports Star
Paul Aronsohn, State Ombudsman for Individuals with I/DD and their families
DDD Policies and Procedures Manuals
Southern New Jersey
Guardianship: What you need to know
Gabrielle Bohon, Esq., Vice-Chair, New Jersey Family Support
An Introduction to Supports Broker Service
Patricia Brennan, Director of Waiting List and Special Projects Fee for Service Conversion Team, Division of Developmental Disabilities Department of Human Services
Including Siblings in Future Planning
Cheryl Crick, Coordinator, Family Advocacy and Advocacy Services, The Arc of New Jersey, Supportive Initiatives for Brothers & Sisters in New Jersey (SIBS NJ)
Certified Sibshop Facilitator
Northern New Jersey
Guardianship: What you need to know
Gabrielle Bohon, Esq., Vice-Chair, New Jersey Family Support
Planning for the Future with Plan/NJ
Ellen Nalven, M Ed., Planned Lifetime Assistance Network of NJ (PLAN/NJ)
An Introduction to Supports Broker Service
Patricia Brennan, Director of Waiting List and Special Projects Fee for Service Conversion Team, Division of Developmental Disabilities Department of Human Services
How Support Coordination Can Help In Planning For the Future
Alycea Tetto, Support Coordination Manager, Disability Services & Advocacy, LLC
Caregiver Succession Planning: How to Pass the Torch Effectively
Lorraine D’Sylva-Lee. Training and Consultation Specialist, Rutgers Behavioral Research and Training Institute, Children’s System of Care, Training and Technical Assistance Program & CEO of LEE (Learning Enrichment Experiences) Services
Including Siblings in Future Planning
Kara Kushnir, MSW, LCSW, Sibling, Psychotherapist, New Jersey Council on Developmental Disabilities Member
Online Resources
PLAN/NJ: Planned Lifetime Assistance of New Jersey (PLAN/NJ) is a unique, not-for-profit agency that provides practical solutions, thus lessening the fear and anxiety families experience when planning for the future.
Sibling Support
SIBS NJ, Supportive Initiatives for Brothers & Sisters in New Jersey Facebook page
The Supporting Siblings Project by The Arc of New Jersey Family Institute Resources
National Resources Center for Supportive Decision-Making
Charting the LifeCourse Framework: The Charting the LifeCourse Framework was created BY FAMILIES to help individuals and families of all abilities and all ages develop a vision for a good life, think about what they need to know and do, identify how to find or develop supports, and discover what it takes to live the lives they want to live.
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