Advocacy in Action Newsletter

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Advocacy in Action is the NJCDD’s monthly email newsletter.

Are you looking to stay informed about important news about New Jersey’s developmental disabilities community? Would you like updates from the New Jersey Council on Developmental Disabilities? Look no further! The NJCDD presents Advocacy in Actionour monthly e-newsletter.

The NJCDD’s Advocacy in Action e-newsletter provides important announcements and updates about the Council’s programs, grants, and special initiatives. It also includes key information about public policies and other news items happening in the New Jersey developmental disabilities community.

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In This Edition

AdvocacyInAction-Newsletter-April2019


The NJCDD’s Advocacy in Action e-newsletter provides important announcements and event updates for the Council’s programs, grants, and special initiatives. It also provides key information about public policies and other news impacting individuals with disabilities and their families.

• NJCDD Releases New Position Statement on Deinstitutionalization
• Alliance Center for Independence Hosts Memorial Service Honoring Ethan B. Ellis
• Feds Clarify What Qualifies as Community-Based
• HUD to Amend its Policy Regarding ABLE funds
• Family Support Planning Councils  Provider Fairs
• Regional Family Support Planning Councils Are Looking for New Members

NJCDD Releases New Position Statement on Deinstitutionalization

NJCDD Releases New Position Statement on Deinstitutionalization

The New Jersey Council on Developmental Disabilities endorses the policy that, with proper supports, individuals with developmental disabilities, may be/could be capable of self-determination, independence, productivity and integration and inclusion in all facets of community life.

Memorial Ethan B Ellis 1933-2019

Alliance Center for Independence Hosts Memorial Service Honoring Ethan B. Ellis

On behalf of Ethan’s wife, Janet and the Ellis family, the Alliance Center for Independence (ACI) invites you to celebrate Ethan’s Life and work. The memorial service be held on Friday, May 17 from 1 to 4 p.m. at the ACI office.

Join family, friends, an colleagues in honoring this nationally-known advocate and former executive director of NJCDD and ACI. Please RSVP by following the link below:

Feds Clarify What Qualifies As Community-Based

Feds Clarify What Qualifies As Community-Based

Federal officials have issued long-awaited guidance to help states determine what living arrangements for people with disabilities are considered community-based rather than institutional.

HUD to Amend its Policy Regarding ABLE Funds

HUD to Amend its Policy Regarding ABLE Funds

Saving in Acheiving a Better Life Experience (ABLE) accounts are disregarded when determining eligibility for most federally-funded means-tested benefits.

All federal housing support programs are income-based programs and do not have asset limits. ABLE funds will probably be excluded from HUD determinations. The Department of Housing and Urban Development (HUD) has not released guidance as it relates to housing and ABLE.

A HUD administrative legislative proposal bill to amend the U.S. Housing Act of 1937 and other ACTs involving HUD rental assistance programs was issued on April 25, 2018.  Administrative Legislative Proposal Bill Text

ABLE Accounts, are tax-advantaged savings accounts for individuals with disabilities and their families, were created as a result of the passage of the Stephen Beck Jr., Achieving a Better Life Experience Act of 2014 or better known as the ABLE Act.

The beneficiary of the account is the account owner, and income earned by the accounts will not be taxed. Contributions to the account, which can be made by any person (the account beneficiary, family and friends), must be made using post-taxed dollars. Contributions will not be tax deductible for federal taxes. Some states may allow for state income tax deductions for contributions made to an ABLE account.
Visit www.ablenrc.org for more information about ABLE accounts.

Family Support Provider Fairs

Housing Forum

April 27 @ 9:30 a.m. – 2:00 p.m.
Hunterdon County Complex, 314 State Route 12, Flemington, NJ 08822

Transition from School to Adult Life for Students with I/DD 

April 27 @ 9:30 a.m. – 2:00 p.m.
Hunterdon County Complex, 314 State Route 12, Flemington, NJ 08822

Regional Family Support Planning Council

The Regional Family Support Planning Councils are Looking for New Members

Regional Family Support Council members advocate for families and individuals with intellectual and/or developmental disabilities (I/DD) on issues that directly impact their lives. They collaborate with the New Jersey Department of Human Services, Division of Developmental Disabilities (DDD) and Department of Children and Families, Division of Children’s System of Care (CSOC) on how to better serve individuals and their families.

Councils usually meet monthly. Each council may have up to 11 voting members. Council members are volunteers. They will be reimbursed for reasonable transportation, child care, and other related costs.

For information on how to join one of the Regional Family Support Planning Councils, contact:

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